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March Forward
Welcome to the March Forward podcast, a space dedicated to the rare disease community. We understand the unique challenges you face, from the 'diagnostic odyssey' to navigating complex treatments and the emotional toll of caregiving. Our podcast aims to provide clear, trustworthy, and in-depth information, fostering hope and support as we explore the latest advancements in rare disease research and care.
Episodes
8 episodes
How SHEPHERD AI Can Help with Quicker Rare Disease Diagnoses
The search for a rare disease diagnosis can be a long and lonely journey. But what if advanced technology could help light the way? 🔍In this episode of March Forward, we're exploring SHEPHERD, an innovative AI approach bringing new hope ...
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Season 1
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Episode 8
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24:07
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C2S-Scale: Yale & Google's AI That Reads Cells. Will It Work for Rare Diseases?
A new collaboration between Yale and Google just released C2S-Scale, a 27-billion parameter foundation model that's learned to "read" cells by converting gene expression into text. It's already predicted a validated cancer therapy c...
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Season 1
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Episode 7
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21:46
What's inflammation got to do with your rare disease?
Could inflammation be the missing piece in your rare disease puzzle? 🤔If you're living with a rare condition, understanding your body's inflammatory response might be the key to better management and relief. 🔥In this episode of Ma...
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Season 1
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Episode 6
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19:46
The First Therapy to Unlock Trapped Immune Cells in WHIM Syndrome
Imagine your body's best defenders, your immune cells, are ready for duty but locked away, unable to fight. 🛡️ For individuals with the ultra-rare WHIM syndrome, this isn't just an idea; it's the biological reality they live with every day....
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Season 1
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Episode 5
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18:25
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Fidanacogene Elaparvovec for Hemophilia B
Imagine your body's best defenders, your immune cells, are ready for duty but locked away, unable to fight. 🛡️ For individuals with the ultra-rare WHIM syndrome, this isn't just an idea; it's the biological reality they live with every day....
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Season 1
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Episode 4
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17:18
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Afamitresgene Autoleucel (Tecelra) for Synovial Sarcoma
What happens when standard treatments for a rare cancer like synovial sarcoma fall short? Could Empowering the answer lie in empowering your own immune system? 🛡️In this episode of March Forward, we explore Afamitresgene Autoleu...
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Season 1
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Episode 3
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21:04
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Can In-Body Gene Editing Help Cure Rare Genetic Diseases?
What if we could gently fix the tiny genetic 'typos' that cause devastating rare diseases, right where they are in the body? 🧬In this episode of March Forward, we dive into In Vivo CRISPR Base Editing, a cutting-edge science offering a ...
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Season 1
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Episode 2
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21:02
Enzyme Replacement Therapy for Lysosomal Storage Diseases
For families navigating Lysosomal Storage Diseases, the routine of Enzyme Replacement Therapy is a familiar path. But what if the future holds new and different options? In this episode of March Forward, we're exploring the cutting-edge science...
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Season 1
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Episode 1
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27:46
